Portal de Totana
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On March 25 saw the visit to Totana of former Spanish national team player Julio Salinas, which showed their support in the struggle for Rare Diseases.
The visit was very emotional for us to approach the families and children present.
Interested each, operation and implementation of the Association and the projects implemented.
With this show of solidarity and support will meet the Project objectives D'Spread Genes to present to society the problem of rare diseases.
As relevant data, should be appointed that 76% of patients have experienced discrimination at least in some occasion, because of his illness.
A GOAL A RARE DISEASE BY ANDREW INIESTA
Rare Disease Associations are in luck, a figure of global significance speaker serves to combat rare diseases and this is published on its official website http://www.andresiniesta.es/
Since last February, Andres Iniesta has become the authoritative voice in defense of those people with a ER, ie, a rare disease that affects a limited number of the total population, defined as less than in Europe 1 in every 2000 citizens, being generally serious diseases, degenerative or disabling.
The FC Barcelona player manchego has offered to spearhead any initiative that involves improving the quality of life and care of a group that in Spain amounts to more than 3 million affected.
To do this, Andrew gives full support to the associations D'Genes, born in early 2008, and FEDER, Spanish Federation of Rare Diseases, which has been fighting to raise awareness of the serious public health problem posed by rare diseases from 1999.
We encourage you to join this fight and improve the quality of life of people diagnosed by a rare disease and their families.
Source: D´Genes
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