Portal de Totana
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Every step along the way to improve the quality of life of people with a rare disease.
That's what could symbolize Walk Popular III Rare Diseases was held today in Totana, part of the program of events for the World Day of lipodystrophy.
This activity has been organized by the Association of Relatives and Affected lipodystrophy (AELIP) and the Association for Rare Diseases D'Genes, and has enjoyed the cooperation of the Department of Sports totanero Consistory
On the hike have taken part more than 300 people.
Older, smaller, families with children or people with dog have formed a large entourage who has walked together to support rare diseases.
Participants have traveled five miles after leaving the Plaza Balsa Vieja, an activity that has allowed, for the third year, giving visibility to rare diseases and has served to vindicate the importance of research to provide hope for the future lipodystrophy those affected and their families.
Source: D´Genes
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