Portal de Totana
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The Association of Rare Diseases of the Genes and the Association of Relatives and Affected of Libodistrofias (AELIP) have organized the VII Ruta Solidaria Route for Rare Diseases, which will take place next February 5 between the municipality of Totana and the Almeria of Mary.
The day also has the collaboration of the Spanish Federation of Rare Diseases (FEDER), the municipalities of Totana and Maria, Quad Action, Classic Vehicles Association Totana, Motoclub Bursts Totana, Totana Custom, Custom Alhama, Club Vespalia Murcia and Peña Barcelonista de Totana.
After the inscriptions, which will be held at 9:00 a.m., participants will depart at 10:00 a.m. from the Plaza de la Constitución de Totanarumbo to the Sierra de María, where the arrival is expected at 12:30 p.m.
There, from 13:00 hours participants can enjoy a barbecue.
The price of the inscription, which includes the barbecue food in the Sierra de María, has been set at € 5 for children and at € 10 for adults.
Those interested in participating in this route should contact the collaborating clubs or the organizers through the e-mail addressesinfo@dgenes.eso info@aelip.org, or also at the telephone numbers 696 14 17 08 and 968 07 69 20. The deadline for registration is 29 January.
This activity is part of the program of events organized on the occasion of the World Day of Rarasque Diseases, which is celebrated on 28 February.
From D'Genes and AELIP have encouraged the participation in this new solidarity activity and visibility of the rare pathologies and have wanted to thank all the collaborating entities that make this day possible, especially Peña Barcelonista de Totana and Quad Action , Who have supported and promoted this initiative since its first edition.
In addition, they have also expressed their gratitude to Pedro Cánovas for the design of the poster announcing this route.
Source: D´Genes
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