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The president of the Association of Families and Affected Lipodystrophies (AELIP) participates in the Second National Congress on Rare Diseases Valencia organized by the Association Adibi, in the town of Ibi.
The president of AELIP, Naca Eulalia Perez de Tudela, yesterday gave the first testimony at the head table of this congress, which is held until today.
During his speech, the President forwarded the needs AELIP has been discovered on the busy road next to his princess Celia diagnosed with one of the more than seven thousand rare diseases known, a congenital lipodystrophy Berardinelli.
Throughout his testimony revealed the need to support research into rare diseases, the need for a fully inclusive education and force families to continue to help others when they are no longer affected family members, so that questions as she did not remain there and can help others.
From AELIP they want to congratulate the organizing committee for the development of this conference and thank who has been given the opportunity to participate and present their testimony.
Source: AELIP
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