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D´Genes and AeroTotana present the initiative "Wings for an angel" (02/12/2019)

"Wings for an angel" is the motto of the Day of Flights adapted for children with rare diseases, without diagnosis and with disability that has been promoted by the AeroTotana club in collaboration with the Association of Rare Diseases D'Genes.

This initiative, which will take place on December 15 at the facilities of Aeroclub Totana, has been presented this Saturday by the president of D'Genes, Juan Carrión;

the mayor of Totana, Juan José Cánovas, and the members of Aeroclub Totana Isidro Benítez and Javier Velasco.

With this activity, it is intended to make available to children with rare diseases, without diagnosis or with disability the possibility of enjoying the experience of aerial walks of about fifteen minutes, as well as living a day of coexistence of families, with a meal in Club facilities.

Carrión stressed that it is a solidarity and innovative initiative and thanked and congratulated the promoters of the initiative for the idea of ​​making a dream come true as it is to bring the possibility of enjoying air rides to these children.

He also wanted to thank the City of Totana that is always next to D´Genes accompanying the association in the initiatives it undertakes.

Javier Velasco, father in addition to a girl affected by a rare disease, stressed that this initiative is about offering a day of partying and living together and sharing experiences and especially that he wants children to have the opportunity to enjoy these walks He predicted that they would surely like it.

Isidro Benítez, for his part, thanked the collaboration to carry out this initiative and expressed his wish that the participants enjoy a good day.

The mayor praised this type of acts that also serve to make rare diseases visible and appealed that we must continue to claim the need to bet on research to offer a better future and a better quality of life for people with rare diseases.

In addition, he took the opportunity to wish that the participating children can enjoy a great experience.

Source: Ayuntamiento de Totana

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