Portal de Totana
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The fourth edition of the "Days for Affected Andersen hemophilia with inhibitor", organized by the regional Association of Hemophilia Murcia, were closed yesterday afternoon with the participation of children, youth and thirteen families from many locations throughout Spain and in the presence local and regional authorities.
The closing ceremony of the camp, held at the Center for Continuing Education Day and in hemophilia and has been developed for four days, was attended by Mayor of Totana, José Martínez Andreo, the regional Secretary of the Ministry of Health , Juan Manuel Rios, the director general of People with Disabilities, Marisol Morente and President of the Murcia Regional Hemophilia Association, Dr. Manuel Moreno Moreno.
The ceremony was also attended by the secretary general of the Spanish Federation of Hemophilia, José Antonio Muñoz Puche, the councilors of Health, Maria Trinidad Cayuela, and Youth, Josefa María Sánchez Méndez, and the president of FAMDIF, Carmen Gil.
One year, the event has been a camp designed for families, children, adults and young people affected by hemophilia with inhibitor, which sought to promote self-care, addressing psychosocial issues and medical aspects as well as live and share personal experiences among families and other stakeholders, attending the conference.
Attendees, who were accompanied by their parents, they have learned during these days in various technical seminars care and control of the disease to improve their quality of life, and prevention of bleeding and arthropathy, and have known inhibitor therapy.
Totana Mayor acknowledged the work of Dr. Moreno and his team to pass on to the Administration as "sensitivity and enthusiasm" for this disease, and secured the cooperation of the Consistory totanero in activities that promote the Centre, hereinafter the same way as has done so far.
Thus, highlighted the work being conducted by this association and, in particular, Dr. Moreno, for the world of hemophilia and requested him to continue with the same "enthusiasm and excitement," and welcomed all attendees Totana , while inviting them to know "more about" this county.
For his part, Manuel Moreno gave a brief historical overview to the evolution of this disease by ensuring that the Region, and the Hospital Virgen de la Arrixaca were more pointers when it comes to treatment of hemophilia concerns and requested the Secretary-regional
of the Health Ministry's permanent implantation of Thrombosis and Haemostasis Unit at the Medical City Arrixaca.
The Secretary General of the Spanish Federation of Hemophilia, thanked the consistory totanero the work given to the association, since "the city of Totana has always been with us."
Source: Ayuntamiento de Totana
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