The departments of Social Care and Health have raised a joint motion to regular full month of March 2015 to support the celebration of World Day to be held Lipodystrophies on March 31, 2015 AELIP and promoted by the Spanish Society lipodystrophy (SEL).
Also, remember manifest the institutional commitment to the Manifesto of the World Day of lipodystrophy.
The manifest basically calls for the creation of reference units worldwide in comprehensive care to patients, these diseases are considered as social and health priority by different public and private institutions and the establishment of a map of experts and professionals from different public and private institutions.
Transmitting the first global registry of patients with lipodystrophy syndromes are also infrequent calls, establishing concrete measures to ensure equitable access to vital drugs use for families with lipodystrophy, in particular human recombinant leptin.
Similarly, the manifesto refers to the promotion of research in this area through the centers, services and reference units;
measures to ensure the care of people with these pathologies requiring transfer to another member state and institutional support for the European network of clinical and basic groups working in the field of lipodystrophy.
The motion also includes promoting it from different fields and social institutions can organize joint activities to mark March 31 as World Day of lipodystrophy.
With these aims to raise awareness and publicize the set of diseases that pose lipodystrophies, characteristics, treatments and resources for patients and so on.
Source: Ayuntamiento de Totana