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Children are the main protagonists in the activities that will commemorate the World Day of Rare Diseases Totana (27/01/2012)

Children will be the main protagonists in the activities marking the World Day of Rare Diseases, held on 29 February.

This was announced the councilman of Culture, Alfonso Cayuela, and the president of the Association for Rare Diseases "D'Genes" Totana, Naca Pérez de Tudela.

First, the council has thanked the great work of this social group that carries out the actions that take place within the association, since there is an important step in the struggle for these rare diseases, which many people suffer from.

The objectives of this campaign, as indicated by the president of "D'Genes" premium to sensitize, inform and educate on the issue of rare diseases in Spanish society, and move the importance of the union, cohesion and mobilization for social change possible rare diseases, among others.

To raise awareness and draw attention to situations of inequity and injustice experienced by families, announced as the president of the association "D'Genes", the ambassador supportive of this year 2012 is a capable person mobilize 46 million Spanish, with a great spirit of excellence and values ​​they transmit work, solidarity and effort, Vicente del Bosque.

On 2 February, held a dinner restaurant "Miras" under the name "Go for the goal to rare diseases" in the national team that will participate and in which there will be dancing and singing performances.

The ticket price is 30 euros for adults and 15 children.

The child care center

As stated by the project coordinator "D'Genes", Eva León, the Spanish Federation for Rare Diseases in collaboration with the BELIEVE (State Reference Center for Rare Diseases), have published a children's story under the name "The history of Federito, four-leaf clover. "

This children's edition chronicles the feelings and difficulties with which clover is grown in a garden, a club that is different from the rest.

This story, according to the voluntary association, aims to become a teaching resource to help him understand the children, in a simple and clear, the importance of acceptance and respect differences in others.

During the awareness campaign will take place during the month of February in several schools in the municipality, this story will be used as educational support to address the acceptance of diversity that can be given in classrooms and other settings of the lives of the small.

Furthermore, it has scheduled a performance of "Magic Kids" to be held on Friday February 10 at 20:00 am in Room Performing Arts "Film Velasco" the hand of the Great Magician Drexler.

Collaborative input is priced at three euros.

In addition, we have scheduled a series of activities that also commemorated the World Day of Rare Diseases.

Specifically, on February 8 will take place the II-Sierra Solidaire Totana of Mary with the participation of the Classic Vehicle Association Totana, the Motoclub "bursts" and various associations.

On February 25 will develop the solidarity walk, hand Athletics Club, and on February 29 will be held at the door of the City of Totana reading the manifesto of the World Day of Rare Diseases.

Already on March 3 gala dinner will take place annual awards of the association.

All tickets can be purchased through members of the Association at the headquarters, in the narrow street and Footwear Carrión.

Source: Ayuntamiento de Totana

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