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Vicente del Bosque will support the Rare Disease Totana (20/01/2012)

The joint dinner will raise funds for the group of people with a rare disease that is part of the events planned to mark the World Day of Rare Diseases.

Vicente del Bosque has agreed this year to be the image of the campaign to promote dissemination of the needs of more than three million people affected by rare diseases in our country and to commemorate the World Day of Rare Diseases to be held on February 29 .

The national soccer coach vindicate "the right to life of people with rare diseases" and joining the global movement that will take place in February with the aim of positioning rare diseases as a health and social priority.

Through this campaign seeks to vindicate the right to life of more than three million people suffering from low frequency in Spain.

The national team thus joins other athletes who support the Spanish Federation for Rare Diseases, as Andres Iniesta and Fernando Torres.

Genes and Association ERDF D'Murcia wish to thank most particularly the involvement of Vicente del Bosque with people who need it most, namely in this case with those affected by rare diseases.

During the course of the dinner will be delivered solidarity of the membership badge of honor of the Association D'Genes and Gene D'prize awarded in fiscal 2010 for professional reasons and was unable to collect.

Note that this activity is to consolidate the holding of "Go for the Goal for Rare Diseases" which began last year with a first edition in the municipality of labor Totana these two entities.

The cover charge to attend joint dinner is 30 euros to 20 euros for adults and children.

Those interested in buying can apply on mobile 968 420 287 / 696 141 708 / 690 94 52 33 and contacting any board member Gene D'or Officer of the ERDF in Murcia, Juan Carrion Tudela.

Source: D´Genes. Foto: archivo Totana.com

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