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Success in the first edition of "Go for the Goal Rare Diseases" (01/12/2010)

The event, held on Friday 19 November, was organized by the Rock Barcelonista of Totana and allowed the collection of funds for projects and services that develop the Association D'Genes Murcia and ERDF.

The event was attended by numerous local and regional political authorities and the Director of the State Reference Center for Rare Diseases of Burgos, Miguel Angel Ruiz Carabias.

The dinner was chaired by FC Barcelona president Sandro Rosell, the Mayor of Totana, José Martínez Andreo, president and CEO of Feder rock in Murcia, Juan Carrion, president of the Association for Rare Diseases Genes D'Region Murcia, Naca Pérez de Tudela, Mayor of Cehegín and Regional Director of Trade and Handicrafts.

During the ceremony, paid tribute to two very dear people who died recently, the first one, Diego Martinez "El Mello", who was president of the Rock Barcelonista Cehegin and died from a rare disease "ELLA".

The second was president of the Rock Barcelonista of Alhama de Murcia, José Soriano "Kubala" a beloved person powering many grassroots sport in the town of Alhama.

Over dinner a raffle was held in solidarity with a shirt and a ball signed by all the players of FC Barcelona, donated by the event organizers.

The musical note was carried out by the Argentine singer Jorge Soria, who presented his work called Songs of Grandstand, a tribute to the Football Club Barcelona.

The singer was accompanied by a Totana Ballet who performed several dances during the dinner.

Also released the book "Passion and Zeal Blaugrana" whose benefits are intact for projects aimed at improving the quality of life for people with a rare disease.

And to Miguel Angel Ruiz Carabias, director - manager of the State Reference Center of Attention to People with Rare Diseases and Their Families, which was present at the event.

Source: D´Genes. Fotos: Totana.com

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