Portal de Totana
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The Association of Rare Diseases D'Genes and the Association of Relatives and Affected of Lipodystrophies (AELIP) have organized the VIII Solidarity Route for Rare Diseases, which will take place on February 4 between the Murcian municipality of Totana and the Almeria of María .
The day also has the collaboration of the Spanish Federation of Rare Diseases (FEDER), the municipalities of Totana and Maria, Quad Action, Classic Vehicles Association Totana, Motoclub Ráfagas Totana, Totana Custom, Custom Alhama, Club Vespa Totale, Club Vespalia Murcia and Peña Barcelonista de Totana.
After the inscriptions, which will take place at nine in the morning, the participants will leave at 10:00 hours from the Plaza de la Constitución de Totana towards the Sierra de María, where the arrival is expected around 12:30.
There, from 1:00 pm, participants will be able to enjoy a barbecue lunch lunch.
The price of the inscription, which includes barbecue food in the Sierra de María, has been set at 5 euros for children and 10 euros for adults.
Those interested in participating in this route should contact the collaborating clubs or the organizing entities through the e-mail addresses info@dgenes.es or info@aelip.org, or on the following numbers 696 14 17 08 and 968 07 69 20. An advance point of sale has also been enabled in the totanero Robermoto establishment.
The registration period will end on February 1.
This activity is part of the program of events organized to mark the World Day of Rare Diseases that is commemorated on February 28.
Source: D´Genes / Totana.com
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