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La Peña Totana Barcelonista collaborated with the Second National Congress Fragile X (24/10/2016)

Through its program helps Smiling, the PB Totana request of the group Fragile X Association D'Genes rare diseases, has returned to work with patients affected by this rare disease.

This time it was with the Second National Congress dedicated to this disease, and that has developed in Molina de Segura during the weekend of 15 and 16 October.

Thanks to the costumes donated by the PB Totana, everyone attending this Congress, especially the smaller ones, they have enjoyed and photographed with famous people who represent them.

The president of the PB Totana, Juan Carrion, congratulated all the participants in this Congress, this activity developed and very sure will help raise awareness in the fight against this disease and improve the quality of life of people They suffer and in our region, affecting more than 200 families.

Juan Carrion wanted to have a special card for both X-Fragile section of D'Genes association as to the direction of the Hospital de Molina de Segura for organizing this national conference.

Source: PB Totana

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